I actually had... I was actually going to buy a webcam with the money I got
because the webcam is down there so often if I lean back comfortably it's
like hey welcome to the show which is not a negative thing I don't mean that
like that in a fat phobic kind of way but the thing is it's like this is actually my face
but in order for you to be seeing or me be seeing my face as it is like this
is it I have to sit up a little bit which is
not very... it's not gonna happen, so I'm like ehhhh. I called a crisis hotline when I was in a
state of crisis guess what they're not trained to talk to disabled people
dealing with systemic ableism and like chronic medical ... like chronic medical insomnia.
alright. hello lovely peoples I am Michele, a narwhal! this is my hospital bed
Avita and you're watching One Spoon Left with Rebel Wheels NYC and today is
a different kind of video if you follow the show then you know I rarely do hauls
nothing against hauls but I'm poor so I don't do a lot of shopping lol, but it just
so happens it's around the holidays and my mom gave me a gift card and so you know
what? 2018 has been a really really tough challenging at the core level kind of
year, I thought you know what Michele have have a little bit of fun so a quick
story as to why 2018 sucked, also warning this video is gonna talk about
suicide feelings and medical trauma and ableism and just all kinds of stuff I
don't really talk about this topic very much because... traumatic...
a little traumatic on the traumatic side of traumatic-ness because it just really
got like... sometimes... and leave a comment if you can relate to this, but sometimes things
get so... fucked up and you're just like... why?! why must things get to that level of
fucked up-ness. so it happened was in 2018 I got dysphasia.
dysphasia is when you are unable to swallow food and water and liquids
unless it's at the perfect consistency which is very very tricky to...uh, achieve I
was going to say perceive, but achieve is the right word you do not get the liquids and/or food at
the perfect consistency, you choke which makes eating and... which is a necessary
human thing, really fucking stressful because... I need a hug. it was horrible & scary & I didn't like it.
now people, what I found that when they get dysphasia they go into like rehab centers and they get like
speech therapists and they get a whole team of doctors that help them you know
work on getting the perfect consistency the proper diet & nutrition and you know
work on regaining the muscles to swallow it all all those other stuff right
however my primary doctor for some fucking reason, and normally I speak
glowingly about him, but he really fucking dropped the ball and he
basically told me well you have dysphasia, just drink a lot of smoothies and see me in
two weeks and left me on my own to figure this shit out and things got bad
I mean as it was I have a lot of digestive issues and dietary intolerances
so that or was already making eating a bit limited and you throw this
in and it was just... just why?! I went a month probably eating about under a
thousand calories a day. and then my brain, maybe it's related I don't know, I
grew a second brain cyst... that fucked shit up. also start getting a lot more spasms
during that time bladder spasms, sexy. spine muscle spasms and as a result of
all these things, I developed chronic medical insomnia from I would say about
two month period where I barely was sleeping. now I
thought for sure that I was going to die because how the hell can your body
subsist? survive on such a little sleep to a long period of time?
apparently it can, but it doesn't go very well. you know it was really hard for me
because I could not figure out how to take care of myself. it got to the point
where I just wanted to die. wanted to die. (slow mo) wanted to die. it's not so much that I wanted to die, I
just didn't know how to else to get relief. I guess I associate death with
relief. and what made it even harder was the fact that I had these home health aides at the time
and they would say this shit to me like you know if I was depressed or scared
"don't cry. it could be worse" which just totally fucked with me even further
because now I'm battling all these different things, I'm in a near state of
like... near constant like sensory overload because I'm not sleeping, and my body is all
dehydrated and starved and all this shit and then but... but god forbid I'm scared
about that or I feel sad it's just that I had like spent all this time doing
acrobatic moves in my head trying to like validate my own goddamn valid
feelings. so about like a month or two months of this, my body was just so worn
down that it started to get a lot of these like persistent spasms. like I was
spasming in the digestive area and spine and there's a shitload of pain in the back
of my head where that second cyst I grown, but uh it's like his arm was just like
going like this [spasm motion] sometimes for hours at a time and I ended up in the hospital and
the hospital was of no use. the fact that I grew a second brain cyst, they're like "oh,
that's nothing. ever see a psychiatrist?" now things are doing a bit better. I
sleep 'cus I have a hospital bed so that my, my spine spasms have stopped I know how to
manage my dysphasia. technically, I did get money for my birthday, when I was in the
hospital, but really I mean I was so depressed that there was really nothing
that I could think of to get and then also once I got out of the... of the
nursing home, I needed to spend my money on like paying for the home health aides
because while you wait for Medicaid, your finances, just are bled dry. however
I do have Medicaid now and they're paying for my home health aides so when
my mom gave me a gift card, I thought you know what let's have some fun. this is one
thing and I got, boingy boing boingy and then here are the other things that I got. so as you can
see, I got a new hat with fluffy pom poms on there.
[shakes pom poms on hat] it does that. I just looked like the interactiveness of it. meow meow meow, I get to be a
cat. I have this, which makes a great noise. yeah, look at my purple hair [wig]. looks pretty...
have to trim... the bangs 'cus I can't really see. anyway that's it what do you
think put your comments in the comment section 'cus that's where they belong. be
good to yourself, be kind to yourself. that's why... fun fact why I end the videos with
that now. it's because, there's... there's just when I got out of the nursing home,
everything that had happened within the last like 2, 3 months or so [makes avalanche sound] like
sometimes when things are happening you can't fully emotionally process it and
part of that is it because of my brain is neurodivergent, and I process,
I don't process things in real-time but sometimes also you have to go through
survival mode like you can't stop and cry because you have to get through this
you have to somehow find a way to get through this
and so I think when I was by myself, and everything... and there was that... that
moment of calm, everything went [avalanche sound] and I was dealing with a lot of depression and a
lot of anxiety of just how fucked up things got and so that's when I started
saying "be good to yourself, be kind to yourself." I'm saying it to you but I'm
all saying it to myself anyway so that's it. um thanks for watching. bye.
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