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The South Carolina Supported Decision Making Project
A collaborative effort between Able South Carolina, Protection and Advocacy, Family Connnection, and The Arc of South Carolina
Funded by the South Carolina Developmental Disabilities Council
A Better Way: Stories from the South Carolina Supported Decision Making Project
A Family's Perspective
"Yeah, I like to hunt."
Carl is an incredible 21-year-old young man with a passion for life.
"I shot the nine point buck because since I got to know the one nine..."
Excited about learning. Excited about the world that he wants to live in.
"I can be a tour guide in a museum."
Carl has some challenges with intellectual disability and occasionally
he needs me to explain something to him in a way that he can really really get it.
"This is two, three, four"
If I go out and I'm gonna buy a car, I turn to my dad I say dad, you know...this car, this car...this has better mileage, this has this.
I go to a friend and they say no, you got three kids, you're gonna need more space in the backseat, you're gonna need this.
And I get a lot of input from a lot of people.
People look at me and say "Oh, he has a lot of wisdom because he's willing to have supports from other people."
Yet, when a person with intellectual disabilities needs supports, we say "they're disabled." And I don't see where the difference is.
Supported Decision Making is how do we as, all of us as human beings, surround ourselves with a group of people
who will help us when the process of decision making is needed.
And for Carl, I'd like it to be a very clearly documented and structural way that that would happen.
"I've been doing impressionist art."
It amazes me how many parents have jumped straight to guardianship because
they're afraid someone's going to take advantage of their child.
"This picture I did..."
So I think parents go into it wanting to make sure that they can get medical information on their children,
still help make medical decisions for their children,
make sure that somebody doesn't take advantage of them financially,
and doesn't take advantage of them with decision making.
So, they think the cure-all is guardianship.
The most painful things for me as a supporter of families of kids with special needs is
for so many years all I've promoted is guardianship.
And that I did it because I wanted to protect our kids.
I wanted our children to have a safe place to be.
But I really did act out of fear.
I have literally counseled parents to take away their children's civil rights.
And I had a change of heart when Able South Carolina sat down and met with me the first time.
And Kimberly, the Executive Director, looked at me and she said "WC, do you want Carl special or do you want equal?"
And that changed everything for me.
Interviewer: Do you want to get married one day?
Yep, I would. Yes. Yes, I would. If my dad let me to
WC: If I let you to? It's your decision, not mine.
I would do it, yes.
Interviewer: You're smiling real big!
Right!
Fear keeps us from moving forward. This is for not just disabilities, but for anything.
But faith in the future moves a person forward.
So I would rather walk in faith than I would walk in fear.
And faith says okay, I believe that there is a way to make this work. There are supports out there.
You know, there's Arc, there's Able, there's Protection and Advocacy, there's Family Connection.
There's a group of people out there that are willing to surround people and help them think through that process.
For more information, please visit scsupporteddecisionmaking.org
or call Able South Carolina at 803-779-5121
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